Cloacal Exstrophy
Expert Care for Cloacal Exstrophy
Learning your baby has cloacal exstrophy can feel overwhelming. You don't have to face it alone. From diagnosis to long-term care, you'll have a team who listens, explains, and walks with you through every step of the journey.
Cloacal exstrophy is a rare condition present at birth. It means a baby's organs, like the bladder and intestines, develop outside the body instead of inside the abdomen. The bladder is typically divided into two parts, and other organs, such as the rectum, liver, or spleen, may also be affected. For boys, the penis might be split. For girls, the clitoris may be divided.
This condition is part of a group of differences known as OEIS syndrome, which includes:
- Omphalocele: When abdominal organs grow through an opening near the belly button.
- Bladder and rectal exstrophy: When the bladder and rectum don't form completely and remain open.
- Imperforate anus: When the anal opening is missing or blocked.
- Spinal differences: These may be mild or more serious, like spina bifida.
Every child's journey is unique. With the right care team and support, families can take the next step with strength and clarity.
Learning your baby has cloacal exstrophy can feel overwhelming. You don't have to face it alone. From diagnosis to long-term care, you'll have a team who listens, explains, and walks with you through every step of the journey.
Pediatric General Surgery Clinic
Learn MorePediatric General Surgery Clinic
CHRISTUS Children's General Surgery Clinic in San Antonio provides exceptional surgical care for infants, children, and teens.
A Team Built Around Your Child
Your child's care is led by a team at CHRISTUS that may include pediatric general surgeons, urologists, colorectal and urogenital surgeons, orthopedic surgeons, physical therapists, psychologists, and nurses. Everyone works together to build a plan that grows with your child, focused on their comfort, development, and well-being.
How is Cloacal Exstrophy Diagnosed?
Cloacal exstrophy is often found before birth during a routine ultrasound. Finding this condition through ultrasound gives parents time to ask questions, prepare, and plan care. After birth, the diagnosis is confirmed through a physical exam and imaging tests. These steps help your care team understand exactly what your baby needs so that the proper support is in place from the beginning.
Treatment and Care for Cloacal Exstrophy
Cloacal exstrophy is treated through a series of surgeries, often over several years. Each step is designed to protect your child's health and help them grow and thrive.
- First surgery, shortly after birth: Surgeons close the abdominal wall and bring the two halves of the bladder together. A colostomy is created so stool can safely leave the body while healing begins.
- Bladder reconstruction, later in infancy or early childhood: The bladder is fully rebuilt. Sometimes, orthopedic surgery is needed to move the pelvic bones closer together for better support.
- Pull-through procedure: If enough healthy colon is present, the intestines can be reconnected so stool can pass through the anus instead of the colostomy.
- Other surgeries over time: Some children need procedures to support the spine or reconstruct genital anatomy as they grow.
At every stage, a care team walks with your family, planning, adjusting, and supporting your child's journey toward strength and independence.
Long-term Outcomes for Children with Cloacal Exstrophy
Children born with cloacal exstrophy often need ongoing care, but with the right support, they can grow up strong and active. Some may need a catheter to help empty their bladder or follow a bowel management program to help stay clean. Others may need more surgeries as they grow, to improve how their body works and feels.
A team of specialists—including colorectal surgeons, urologists, therapists, and psychologists—works closely with each family. They help build a care plan that fits your child's needs and supports their growth, confidence, and independence.
With trusted care and steady support, children with cloacal exstrophy can go on to enjoy school, sports, friendships, and everyday life.
Get Comprehensive Support
If your child has received a diagnosis or if you have questions, our team of CHRISTUS specialists is ready to listen. We're here to help you understand your options and support your next step.